Yesterday was a
low talking day for my mother. Her voice was not strong and she seemed to
strain for breath.
Earlier, on the
phone, she has asked me to type up clarification about “this new program I’m
in,” to help her remember what hospice is, what it does and what is different for her.
It’s hard to know
how honest to be with her about her condition. When I explained hospice to her,
I called it ‘palliative care’ because hospice has such a strong association
with dying. And, really, hospice is about the care of a patient, helping to
make him or her comfortable during terminal illness. Hospice is not a death
sentence, it’s a pledge to care and to comfort.
My mother is
either forgetting the seriousness of her conditions or is in denial about her
prognoses. It’s likely that her bewilderment is a combination of both.
Yesterday she
remarked, as she often does, that she’s tired of being sick and is anxious to
get better.
Later, in the same
conversation, she looked out towards the sky and told us that she envisions
four birds on a tree bark (we assume she meant branch) waiting to fall.
“Evelyn was first,
so that’s minus one, and now I am waiting to fall,” she said.
Here is a perfect
example of how her brain is operating: my mother can make a beautiful analogy
like this, but have it mixed up. Evelyn was the first of her cousins to become
ill, but she is alive and living well at home with an aide.
Still, I am happy
to have this lovely way to describe her circumstances to her. I wonder if she
will remember the picture in her mind of the four birds on a branch.
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